Alexander Lee and his memere, CynOur grandson Alex is very sick.
The pediatric neurologist believes he has SMA1,
Spinal Muscular Atrophy
NOT a good diagnosis
The children can live anywhere from just a few weeks to just a few years.
A week ago they drew blood for genetic testing, but it will take up to 4 weeks before they get a definite diagnosis.
UPDATE:
Test results in tonight confirm the neurologists suspicions.
AlexAlex has just been admitted to the hospital.
He has not eaten anything in 24 hours.
For those of you who are prayin' folk, we would appreciate your prayers.
There is MUCH I cannot say right now, or maybe never.
But...
We would covet your prayers.
Though He slay me, yet will I serve Him,
Cindy
He has not eaten anything in 24 hours.
For those of you who are prayin' folk, we would appreciate your prayers.
There is MUCH I cannot say right now, or maybe never.
But...
We would covet your prayers.
Though He slay me, yet will I serve Him,
Cindy
UPDATE:
Alex will be having a permanent feeding tube put in very soon. He is no longer able to drink from a bottle. His breathing has become labored, but he is still able to breathe on his own.
The feeding tube will allow his parents some time to come to some decisions about what they will do when the time comes when they might have to ventilate him. I am bringing Austin, (Alex's 9 yo brother) who we have had since Alex was hospitalized, up to the hospital this afternoon. He hasn't seen his mom or Alex since Monday morning.
Thank you everyone for your prayers. Much needed, and much appreciated.
Alex will be having a permanent feeding tube put in very soon. He is no longer able to drink from a bottle. His breathing has become labored, but he is still able to breathe on his own.
The feeding tube will allow his parents some time to come to some decisions about what they will do when the time comes when they might have to ventilate him. I am bringing Austin, (Alex's 9 yo brother) who we have had since Alex was hospitalized, up to the hospital this afternoon. He hasn't seen his mom or Alex since Monday morning.
Thank you everyone for your prayers. Much needed, and much appreciated.
Dear Cindy ~ So sorry to hear this bit of news. May the Love, Peace, and Strength of Jesus be with you all right now.
ReplyDeleteLove, hugs and prayers ~ FlowerLady
My prayers are with you and your family.
ReplyDeleteDear Heavenly Father, I lift up to you this precious little boy and his loving family to you right now. May the doctors have wisdom and the family have your grace and strength at this most trying and difficult time. Please comfort Cindy and her husband, the parents of little Alex and their extended family and friends. If it be your will to heal him, I ask that you would...may your perfect and infallible will be done in his little life. We know that you do all things well...how blessed we are to belong to You! Please carry this family through these days and help them to know the comfort of your peace through these days.
ReplyDeleteI pray all this in the name of our precious Saviour, the LORD Jesus Christ.
Amen
Oh..Cindy as Tears well up in my eyes as I write this to you..My heart is Tender and soft not only because I count you and call you friend but also just recently myself having a baby..I see your precious Alex and I see my Baby stairing back at me...Please know that I will be on my knees for your dear and precious Alex, as well as for those who love him more than life itself here on this earth...His Mommy and Daddy as well as You and your husband and those who also have been touched by his Birth..
ReplyDeleteIn Christ
Angelina
I can only imagine the anxiety as you wait for the results. I pray the family would have much time to get to know Alex in his life, and that it would be long. Praying for God's presence for you all.
ReplyDeleteVictoria
Dear friend -- I don't have any words. I am so sorry -- but I am praying for you and your family.
ReplyDeleteGwynie
I am SO sorry to hear this news. Prayers are being sent! His picture is precious and may there be healing in his little body. Keep us updated when you can, but know that our family is praying for your entire family.
ReplyDeleteHeather
Tears for you and the situation, friend. I wish I could help, you know what I mean? Thank you for keeping us posted~
ReplyDeleteLove and hugs,
Kathy
YOu know that I will be lifting you and your family in prayer.
ReplyDeleteI am so sorry to hear the news. He is such a little cutie.
I am so sorry and I am praying for you all.
ReplyDeleteI am so sorry and I am praying for you all.
ReplyDeletePraying for you and your family.
ReplyDeletePioneer Beauty, posted about this, I will pray for you and your baby, my heart aches, because my little brother went throguh this as well, and I know it's not good.
ReplyDeletePlease do keep us updated, may God give you strength in this time of need, in this moment of life's struggles.
Blessings, to you and your family, and that precious little baby.
Stay Strong.
~Katie -D
What a precious baby! Praying for your entire family. Praying that the Lord would walk beside you, carry you when you can no longer stand on your own and bring you an overwhelming peace! Wisdom for the doctors and those that have to make decisions on this little guys behalf. Keep us posted as you can...always praying! {{{HUGS}}}
ReplyDeleteOh, Cindy....I can only imagine how you all must be feeling...will be lifting Alex, and all of you to the Lord.....
ReplyDeletesweet alex will be in my prayers every
ReplyDeleteevening.
we almost lost our first child. he was
diagnosed with 4 or 5 terrible things,
but now he is 6'7'' and the picture of
health.
i will ask for the same for your alex.
Joining all the others in prayer for precious little Alex, his family and you.
ReplyDeletePlease be comforted to know that many who have read this post are praying and interceding for baby Alex.(Even on the other side of the world.)
ReplyDeletePraying that God in His tender mercy will heal and restore this precious baby who is so dear to you and your family.
'Hear my cry O God;
Attend to my prayer
From the end of the earth I will cry to You,
When my heart is overwhelmed;
Lead me to the rock that is higher than I.'
Psalm 61 1-2
On my knees praying for you all...and for little Alex.
ReplyDeleteI've posted a link to your post on my prayer blog "On Bent Knees".
Stay strong in Jesus,
Jenna
I'm so sorry to hear this Cyn. I will pray for him right now & continue to do so.
ReplyDeleteRenata ((HUGS))
I'm so sorry...and I pray
ReplyDeleteYou,Alex and family are in our prayers.
ReplyDeleteDon't let the Dr.s tell you a timeframe, we were told this with Cortney when she was just 2-1/2 yrs old that if she lived to be 4yrs old it would be a miracle but God knew His plans for her and she is ow 19yrs old and doing great. She's blessed our lives in so many ways, we can't even begin to count them.
HUGS to you all, espcially Alex.
Blessings,
Kelle
I know personally of a family that had two daughters diagnosed with this ~ PRAYING that the diagnosis is wrong!
ReplyDeleteMy heart is breaking for you and the rest of the family. I will keep little Alex in my prayers.
ReplyDeleteCyn,
ReplyDeleteSending prayers to the One who created Alex and loves him. May you feel the Lord's peace and comfort wrapped around you.
Much love and hugs,
~Faith
What a darling & handsome grandbaby you have! You've been in my thoughts and prayers all afternoon. How thankful I am that you have a Comforter in your sorrow!
ReplyDeleteI pray God will hold you in his loving arms, give you peace and allow you joy as you get to know this sweet child.
ReplyDeleteLaurie
Sorry I missed your call. Praying... Will call in the am
ReplyDeleteCindy, I felt so helpless and at a loss for the right words tonight on the phone because I know I can't bring you a miracle or say the thing that will make everything better, but I'm so thankful we know a God who can. You know I'll keep praying for you, Alex and your family.
ReplyDeleteLove,
Jen
My prayers are with you and little Alex. God is still does miracles and we will continue to lift him up before the throne of God.
ReplyDeleteMay you feel the Lord's peace and comfort wrapped around you as we pray for Alex..
ReplyDelete~~HUGS~~
Sweet Cindy........praying for Alex........and your whole family that the God of the UNIVERSE will meet you face to face and that you will experience all that He has for your family!!! He will hear the prayers of all of these precious ladies and families that have written to you in all these comments. Find comfort that we are taking you before the King of King who hears the prayers of HIS CHILDREN and acts on them. What a beautiful little boy!!!! Give Alex a kiss from all of us Grammies and Mommies! Tell his Momma and Daddy that there are a lot of ladies that care.
ReplyDeleteMy heart is aching for your family.
Hugs sweet friend, Linda
Linda sent me your way. My eyes have tears. I don't understand the WHYs but I know God is there with you holding that sweet baby. Prayers your way.
ReplyDeletePraying for you & your family~May God surround you all with His supernatural peace, love, comfort & strength at this time & always!
ReplyDeleteI came over from Prairie Flower Farm. My prayers are with you and your family.
ReplyDeleteMy oldest daughter was diagnosed with a rare form of muscular dystrophy and lived to be one month shy of her 30th birthday.
Big Hugs,
Donna
Oh, dearest Cyn, I am praying for you & your family. Precious little Alex is a great part of God's wonderful plan...how honored you & your family should feel to be loved & trusted so much by God that He allowed YOU to be the ones to love & care for little Alex! God has placed him in YOUR family b/c HE KNOWS how special you are & that you all will give him just the right amount of love, comfort, kisses & prayers.
ReplyDeletePrayerful blessings from Ohio...Kim<><
oh Dear God, please let it not be so.
ReplyDeletemy heart is aching for you all right now.
I pray God to relieve your stress.
What a beautiful gift from the Lord he is! I will pray for Alex, you and your family.
ReplyDeleteI'll be praying for precious Alex!!!! Thank you for being vulnerable to share this with us. I know it's not easy!!! I"ll continue to pray for this sweet little one!! Love, hugs and prayers from Oregon, Heather :)
ReplyDeleteYou certainly have our prayers Cyn. Baby A and the entire family.
ReplyDeleteI just came across your blog through On Bent Knees - where Jenna had posted about little Alex. He is in my prayers! Please keep us updated.
ReplyDeleteMany blessings,
~Miss Raquel
www.God-sDaughter.blogspot.com
PS: Would you let me post about him on my blog? Please comment on my blog (or e-mail me...my e-address can be found on my Contact Me page) and let me know.
ReplyDeleteYou are all in my prayers, especially little Alex. Miracles happen through prayer.
ReplyDeleteBlessings Gail
I am so sorry to see this news, we are praying for little Alex and your family, god is good.
ReplyDeletePrecious Lord,
ReplyDeleteToday we little up this precious little one...your child...and ask that you watch over him and his family. They are frightened, Lord, and confused and hurting...and they need a loving touch from You right now. Please wrap Your loving arms around the whole family...give them strength...and comfort. Be with the doctors, Lord, give them wisdom. Of course, Lord, we pray for a miracle...which only You can do. If it is Your Will...heal this child...for we know that You are more than able. And we place all of this burden at Your feet...
In Your Son's Most Holy Name,
Amen
I'm praying for Baby Alex and your family ...
ReplyDeleteI pray that God will watch over this sweet baby and that his will be done over everything. I pray that God will lead and guide this dear family through a very difficult time.
ReplyDeleteIn Jesus name Amen.
Praying for baby Alex and his family.
ReplyDeletePraying for healing and peace for this situation.
I found out about your grandson through Linda at Prairie Farm. I am so incredibly sorry that your family is dealing with this! Baby Alex is a beautiful boy. Y'all are in my prayers.
ReplyDeleteOh dear I am so sorry to hear your news, he is such a gorgeous little soul. I am praying for Alex, yourself and your family!
ReplyDeletePrayers for Alex and your family!
ReplyDeleteStill praying for you all.
ReplyDeleteCyn - You have my prayers for your beautiful grandson, Alex.
ReplyDeleteTeresa
God is still on his throne. My prayers will be with this precious lamb of God, and you entire family. Lana
ReplyDeletePlease know that you will be in my morning and evening prayers. How hard this must be for all of you. It is my fervent prayer that you all feel God's loving arms around you now and in the days to come.
ReplyDeleteOur thoughts and prayers are with Alex and your family.
ReplyDeleteMy prayers are with you & your family and your precious Alex.
ReplyDeleteDear Jesus please heal little Alex and give peace to his family.
ReplyDeleteGod in heaven, give them a miracle. Bless there hearts and lives and help them hold on to you during this very very challenging time. God, we know that you are more than able to heal little Alex, and we beseech ye to do so for this family. Please Lord, give us this miracle today.
ReplyDeleteIn The Name of Jesus,
Amen.
Cindy,
ReplyDeleteMy prayers will be going out to Alex and your family.
Debbie
Prayers are going up here in Kansas for little Alex and your whole family right now - may Jesus wrap His loving arms around all of you! Believing for a miracle -
ReplyDeleteBlessings - Pauline
Sending prayers for you and your family, and most especially precious little baby Alex. -Tammy
ReplyDeleteMY PRAYERS ARE WITH YOU LITTLE ALEX! MAY THE LORD BE WITH YOU AND YOUR FAMILY. PRAYING FOR A MIRACLE.
ReplyDeleteMELISSA
my thoughts and prayers are with your family and baby Alex
ReplyDeleteHeidi
my thoughts and prayers are with your family and baby Alex
ReplyDeleteHeidi
We will be praying for precious Alex.
ReplyDeleteHey Sweet Friend, below are a few comments from my blog to you about Alex. Sending hugs and prayers.
ReplyDeletecarebear7951 said...
Praying...for that little one (that God loves even more than his grandma does!). for his comfort. Praying for the family that they have strength to get through this and to make this their song: "you give and take away....my heart will choose to stay...BLESSED BE THE NAME OF THE LORD!"
primitive ole frugal mumma said...
prayers are coming your way for sweet little Alex and for his family to have the strength to get through this in jesus name i pray Amen.
heidi
May God give you all the strength to get through this time. Praying for Alex and your family. God is the Great Physician and he knows your pain. Please keep us updated.
ReplyDeleteCindy,
ReplyDeleteI just read your post. I am so sorry to hear about your sweet Alex. May the God of ALL comfort shower you and your family with peace. I will be praying for all of you.
Nancy
Oh I am so very sorry. God bless you and your family and especially baby Alexander. My thoughts and prayers will be with you.
ReplyDeletePrayers for sweet baby Alex. I am going to contact everyone I know to pray ! Pleas keep us posted here whenyou can. God Bless your family. Anne
ReplyDeleteDear Cindy. I just read about Alex on Linda's (Prairie Flower Farm)blog. Honey, I'm so sorry for the devastating news. I am praying for little Alex, as well as you and the family.
ReplyDeleteWith loving prayers....Tracy
Oh Cindy~
ReplyDeleteI am praying. My heart is breaking for your family.
Please know Alex will be lifted up daily along with his momma and daddy and family!
Carrie
Isaiah 41;10
I don't know you and you don't know me. I have never visited your blog before, but that doesn't matter. We both know The One who hold all things in His hands. Please know that I am praying for God's peace to flood you and your family and for healing for Alex if it is in God's will.
ReplyDeleteYour sister in Christ,
Tina
I am so sorry, will be praying for all of you. Even when we don't understand God loves us and is in control. My heart goes out to you, little Alex and his parents.
ReplyDeleteOh how my heart breaks for your family. To just get to say hello and to be confronted with the fear of saying goodbye so soon. My husband and I walked this path once with our daughter right after she was born. A miracle took place. I felt tremendous peace to the point I was willing to say with full faith, 'Thy will be done' and I was okay with whatever decision the Lord made. We still have our daughter but sometimes I know the Lord says no, I've sent them for just a short visit. My prayer for you is that you will feel the Lord's comforting arms around you and all those whose care Alex has been placed in will feel his guiding hand.
ReplyDelete:*(
ReplyDeletesending prayers and love to you cyn. x
Cindy, Michelle at 'She Looketh Well' just brought this to our attention. What a darling little child Alex is. I will be praying for him, for his parents, and for you all. What difficult, difficult times some go through. I was thrilled to read your quotation from the book of Job. We have to cling to God at times like this. There is no other.
ReplyDeleteHI Cindy....
ReplyDeleteI'm still praying for sweet baby Alex. I was wondering if it would be okay to share a link to your blog on my Facebook page and ask my friends and family to pray for him too? Keep us updated as you feel comfortable!!! Love, hugs and prayers from Oregon, Heather :)
So sorry for all you are going through...I know it is so hard. We have lost 3 grandchildren, so I will be praying with a hopeful heart that your little guy can live and flourish. May God give you all strength and courage.
ReplyDeleteLinda
I am praying for sweet baby Alex, for his parents, for you and your dear family. I am lifting Alex up in prayer in the name of the Father, the Son and the Holy Spirit. Amen.
ReplyDeleteGod Bless you all.
Johanna
What a sweet lil' guy! We will surely pray with you..and all the other folk's on here.....that God will touch him. Bless you, and his Mommy & Daddy too.
ReplyDeleteHugs from Ohio!
Hi Cindy ~
ReplyDeleteRight now I am quiet ~ sitting here with a full heart.
I pray for this precious boy
~ Alex ~
For the circle of hands and hearts that surround him
~ bringing him the loving touch of God.
I pray for the doctors and nurses
for his family
for you and Pete
{hugs}
Maria
Standing and praying with you. I’m sorry for your pain. Lord hold you tight and give you and your family comfort and confidence in His divine plan.
ReplyDeleteCindy, I will definitely be keeping all of you in my prayers. The Lord gave you this beautiful gift and just know that he will be taken care of. Praying for peace and speedy recovery for Alex. Hugs!
ReplyDeleteLifting your family and little Alexander up to the One Who Always Knows What's Best For Us All. Praying forcomfort and a peace beyond understanding for you and yours.
ReplyDeleteVisiting from Michelle's blog, and praying, indeed!
ReplyDeleteDear Cindy,
ReplyDeleteI've never visited your blog before but I read about you at the prairieflowerfarm blog.
I'm not the praying kind of woman but I am a woman ánd a mother so I'll think about you and your loved ones. Maby that will help a little too. (sorry for my English)
With all my love, Marion.
I am so sorry Cyn, I am Praying for Alex and your family,
ReplyDeleteHugs,
Sue
Standing on Isaiah 54:7~
ReplyDelete(That)No weapon that is formed against Alex and his family shall prosper; and every tongue that shall rise against thee in judgment thou shalt condemn. This is the heritage of the servants of the LORD, and their righteousness is of me, saith the LORD.
May God's Word be true!
Linda sent me. Passing you story on to other prayer warriors. I will continue to pray for Alex, your family and that the doctors would be filled with the mind of Christ.
Keep standing!
Blessings,
Cheryl
after our phone chat last night, I hope you know and can sense the power of prayer .. and the power that comes from the unity of these dedicated women of God.
ReplyDeleteIt is His PRESENCE that truly comforts.
May you all know the PEACE that passes all understanding. This is my prayer. I love you Cyn
There simply are no more words.
Cindy,
ReplyDeleteI cannot even imagine what you and your family must be going through right now. Just know that I am here if you need to talk or pray.
With much love
Jennifer
For Such a Time as THis
We will pray for the little man and for the rest of you. If he goes to be with Jesus, you are the ones who will need the prayer. Looks like there are many all around the US and the World who are praying for this little guy.
ReplyDeleteLove ya in the Lord!
Hugs too,
Mrs. D
My heart aches for you and your family at this time. I will be praying for you for strength and the peace only Christ can give.
ReplyDeleteI am so sorry to here this sad story. I will pray for peace for all of you. What a beautiful child...
ReplyDeleteI am praying for you and your family, for wisdom, comfort and strength, and of course for healing for this precious little one.
ReplyDeleteMy heart is breaking for you Cindy. I am adding little Alex to my prayer list, and I will entreat God most earnestly in his, and your familys' behalf.
ReplyDeleteLittle Alex is in my prayers. My heart goes out to you and your family. May the LORD provide a miracle.
ReplyDeleteI'm adding my prayers for the family as well as Alex. In Him all things are possible.
ReplyDeletei'm so sorry to hear this. you, your family, and alex are in my prayers. God is faithful and he will not allow you to be tried beyond your strength. But along with the trial he will also provide a way out and the strength to bear it.
ReplyDeleteOH Cyn
ReplyDeleteThanks for the update. I have been praying & praying for your little Alex. I'm so sorry that you have to go through this. May God hold you & your family close
Love
Renata ((HUGS))
I have added Alex and your family to my prayers, I have also asked others to add you to thier prayers as well.
ReplyDeleteBlessings,
Denise
Cindy, What a little doll he is, just adorable.I will absalutely pray for him, for his parents, siblings and you..How can something so precious, be so sick?
ReplyDeleteI have prayed and will pray when i say my nightly prayers..
xoxo
Karryann
Praying for peace and wholness and the very hand of God to hold you and your family during this time.
ReplyDeleteI'm so very sorry. Praying for you and yours.
ReplyDeleteMy sincere prayers are with you and little Alex and your family at this time. I believe in miracles.
ReplyDeleteOh,Cyn..I am sorry you must go through this. What a precious little guy he is. Praying for the Lords Grace at this time for you all.
ReplyDeleteYour post was like a punch in the gut. Tears and prayers followed... I'm so sorry your beautiful family is going through such pain and sorrow. Praying for strength for all. Lean on Him...
ReplyDeleteI happened upon your blog this evening and want you to know that I have prayed and will pray for this precious baby. Grace. Great grace. Jesus, send your angels to minister to this family.
ReplyDeleteBless your heart,
Beth
I just stumbled upon your blog today through my mom's blog (carrie @ farming on faith) I am so sorry to read about little Alex. We will be praying for all of you and especially this sweet baby.
ReplyDeleteThe Rodriguez Family
Dearest Cindy,
ReplyDeleteAlthough I don't know you personally I do know the beauty love and Grace of Gods love and miricele I have seen them in my own children and in those of my grandchildren and children of friends.Beleive and never stop beleiving He is listening and He will heal your sweet little baby. I have seen other give up, but those who stayed and prayed saw His miricles.
I will be on my knees prayimg for all of your family and baby Alex.
Psalms 57:1
love and prayers Pam Hoffman
Sending Good Thoughts and Prayers for Baby Alex!
ReplyDelete